Health information is widely available to the public, patients are increasingly informed about their conditions, and many are keen to take responsibility for their own health.
New technologies make it possible for patients to communicate with their health professionals and manage their own health information. Our team of patients, researchers, clinicians and health care decision-makers will reinvent kidney care to reflect the needs and capabilities of patients in the 21st century.
We are working with our patient partners, using surveys and focus groups, to identify aspects of the patient experience that are the highest priority for change. Based on the results of these initial studies, we will select the most promising, relevant tools, strategies, and models for transforming kidney care – then refine and test them in rigorous studies.